She calls herself 'Skinderella'.
Grace Beeby adopted the name after developing eczema at age eight.
Back then, her doctor prescribed a low-strength topical steroid to treat the skin condition, a standard medical response.
"I think when it first started, I had it in the inner elbows and behind the knees," said the 31-year-old. "I remember I had it down my back and my mum would lie me on the bed after a shower and cover me in steroid cream and send me off to bed."
It was tough for a young girl - the eczema was visible; the school ground taunts audible.
"I got teased a lot, me and my best friend at primary school - the kids would call us 'ex and ma' for eczema. Kids are really nice," she smiled.
But Grace faced a bigger problem. The steroid cream would initially work, the eczema would disappear but then after a few weeks it would return. So, the doctor would prescribe a stronger topical cream.
"Then eventually that stops working, so I go back to the doctor and then it's oral steroids and oral steroids are amazing, I have never had such soft skin in my life. So that combined with topical creams was the best two weeks ever, then it stopped working."
This was a rinse-and-repeat cycle for more than 20 years. And every cycle ended with the eczema worse than it was before.
So, in 2020, after discovering she had topical steroid addiction, Grace quit all steroids, both topical and oral. But then she developed topical steroid withdrawal, or TSW, which has been - in her words - "horrific". She's had burning skin, oozing, crusting, nerve pain and inflamed redness.
It impacts every aspect of her life in Papamoa - from sleep to exercise to work.
She said showering can feel acidic on her skin.
"It's like you have a cut and you go into the garage and you get yourself a bit of sandpaper and rub the sandpaper on it and then you go to the fridge and get hot sauce and put hot sauce on it, then you go out to the lemon tree and put lemon on it. That's what it's like to have a shower."
TSW can last for years. But there's limited treatment in New Zealand for it.
"It has wrecked her life, honestly this medication has wrecked her life," said her mum, Diana Beeby.
At times, it's left Grace suicidal.
"The last three years have been hell."
It's been a heartbreaking watch for her mum.
"You are helpless," Diana said. "And I live an hour and a half away from Grace, so I get messages where she says 'I can't do this anymore', and that's been the hardest, when she's hitting rock bottom."
But Grace has just found hope - in Thailand. A clinic there offers cold atmospheric plasma treatment, which kills bacterial and fungal infections and strengthens the skin. She said the success rate is impressive.
"The results, everybody they have had has had improvement."
So, Grace and her mum are moving to Bangkok next month for six months for weekly treatments with an expert who says Grace should get 75 percent of her skin strength back.
"He's going to nurse Grace through the whole treatment," said Diana, who has spent hours researching the clinic. "I just feel we have struggled to find anyone in New Zealand who recognises this condition and will go 'right, I'm going to nurse you through this'."
With no medical funding available, they are now raising money to get there - at least $20,000.
But the cost of not doing it is so much higher.
Diana has a simple message for other mums using topical steroids on their kids.
"I just want people to know, to be aware, don't put this stuff on. Use it really sparingly and then stop. Completely stop."
She now hopes her daughter, Skinderella, finally has a happy ending for her life album.
