Auckland mum angry her non-verbal, autistic son missed out on spot at specialist school

Micah Tuivaiave and his family.
Micah Tuivaiave and his family. Photo credit: Supplied

Like many five-year-old boys, Micah Tuivaiave has a lot of energy. He loves being outdoors enjoying water-play and bubbles. He also loves reading books.

The difference with Micah - who turns six in December, is that he doesn't speak. He has severe non-verbal autism.

"When Micah was young we noticed he was displaying characteristics of autism. He wouldn't babble or make eye contact. He was assessed and diagnosed with autism at the age of two," said his mum Jaz Tuivaiave.

She said Micah - who is her only child, is not fully toilet-trained. She also said he has no fear or any sense of danger.

"He's a runner. While in public you need to hold his hand otherwise he may run off which is a real safety risk. He also likes to climb tall playgrounds, kitchen benches and tables."

Communicating with Micah and trying to understand what he wants can be very challenging for his parents.

"We wouldn't change him for the world. We just want the best for him."

His parents believe the best place for his education is at a specialist school - specifically Rosehill School in Papakura which caters to more than 300 young people with specific learning needs.

When Micah was four years old, his family started the process of trying to enrol him at Rosehill School.

Staff at the school include teachers, education assistants, speech-language therapists, occupational therapists and physiotherapists.

Jaz believes Rosehill School would provide the extra support and supervision that her son needs.

"The teachers there are specially trained so they understand our kids and what they need."

Even though he turned five last December, she didn't expect Micah to get a place at the school this year so he stayed on and did another year at daycare.

"But now that he's about to turn six, I definitely thought 2024 was going to be the year that we got a spot."

Micah Tuivaiave.
Micah Tuivaiave. Photo credit: Supplied

Micah's family has just been told he does not have a place at Rosehill School next year.

The letter states: "We are really sorry to inform you that we do not have a space available for your child at Rosehill School for the 2024 year. This is because we have a limited number of classes, and we are unable to accommodate all the students on our expression of interest list for next year. If you would like to be considered for the 2025 intake, please complete the Expression of Interest form on our website in July 2024."

Jaz said she felt so angry and upset when she read the letter.

"This is such a huge disappointment for me and my whānau who have been waiting for so long. I feel so let down by the Government, the Ministry of Education and the whole education system. It's unfair and it shouldn't happen. Our son should have a spot. Why do we have to jump through hoops to get the help that we need?" she asked.

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The Tuivaiave whānau acknowledges that it's not the fault of Rosehill School, saying there are just not enough resources to accommodate everyone.

They also acknowledge the fact Micah is not alone and that other children have also missed out on a place.

"How are other people doing it? Do they have to quit their jobs if they have no support?" Jaz asked.

Micah Tuivaiave and his family.
Micah Tuivaiave and his family. Photo credit: Supplied

Newshub spoke to Rosehill School Principal Gill Hedley who said at this point in time, 36 people have received a letter saying there is no space for them at the school and that more people are approaching the school every week.

She said the students who missed out are all aged five, six or seven and have ORS funding to attend the school. She says some even have very high ORS funding.

Hedley told Newshub it's not lost on them how hard it is for children who miss out.

"We're very aware of the impact that we have on families when they are told they don't have a place and how stressful it is for them. We're really dedicated to our community and wish we could do the best for all the families who want their child to come to our school," she said.

Hedley said the school is working with the local Ministry of Education to get additional classes.

"We are advocating for the Government to prioritise funding for special school provision to ensure parents have a choice. Families with children with high needs have the right to make choices about where their child is educated, just the same as other parents do."

The Ministry of Education said there are 36 specialist schools in New Zealand and almost $77 million in funding was allocated to specialist schools for Terms 3-4 (2022) and Terms 1-2 (2023).

It has no current plans to open any more specialist schools.

"However when planning all new schools we consider space for specialist provision. We are working to provide classrooms at specialist schools' base sites and specialist provisions in local schools to respond to population growth," said Sean Teddy, Ministry of Education hautū (leader) operations and integration.

For Micah, the only options now are a mainstream school or homeschooling.

Micah Tuivaiave and his family.
Micah Tuivaiave and his family. Photo credit: Supplied

His mother Jaz is employed full-time as a registered nurse at a large public hospital while his father Dan works long hours in the trucking industry.

Because of their jobs, they are not in a position to homeschool so Micah has started visits at a local mainstream, primary school.

"The mainstream school has welcomed us with open arms and made efforts to accommodate Micah, but there's a lot of pressure on them."

Micah needs the support of a teacher aide but currently only has teacher aide funding for two hours a day. His classroom also has more students compared to the classes at the specialist school.

Jaz isn't critical of their local mainstream school but said they simply don't have enough resources to deal with children with high needs.

Micah would need to be supervised at all times by a teacher aide who would help with his learning, help with toileting and make sure he is safe.

"He is only allocated two hours of teacher aid funding. What do they expect us to do with the remaining school day? Do I have to quit my job in order to stay home with my son? If he goes to school from 9am-11am then what happens to the rest of the day?"

Aside from the hours, Micah's safety is also a huge concern to Jaz.

Micah Tuivaiave.
Micah Tuivaiave. Photo credit: Supplied

She is worried about the playground at the mainstream school and says he could easily fall off it.

"Will he try to jump off the playground? Who is supervising him on it? Will he try to run out of the classroom? The doors aren't locked. Our children can be escape artists," she said.

"Specialist schools know the sensory triggers our children have. Some of the kids don't like noises or certain textures. The special school (Rosehill School) has been built for and caters to this. The playground there is more appropriate. Now mainstream schools have to change things to cater for our children."

But the Ministry of Education said mainstream schools are suitable for children with high needs.

"All children can enrol at their local school. Inclusive education is founded in the Education and Training Act 2020, which states: 'people who have special education needs (whether because of disability or otherwise) have the same rights to enrol and receive education at state schools as people who do not," said Teddy said.

Hedley - who believes parents should have a choice as to where they send their child - says the fact no new special schools are being built is an issue.

"To meet the demand of the Auckland area, the Ministry of Education needs to consider building more specialist schools. We really do believe there should be choice for families. For kids with special needs - if there's no special school provision - there is no choice," she said.

A choice is what the Tuivaiave family wishes they had.

"We just want the best for our kids and the special school is where they need to be. Our children with special needs need that extra support. That's all we want. We need to let people know this is not okay. There needs to be more funding so our kids are safe and get the education they need," Jaz said.